Live presentation"Get Engaged: How to be a more powerful patient" (video here) at UCSF Helen Diller Family Comprehensive Cancer Center
Being engaged means being an active participant in your health care and health decisions. Often the results are better medical care with fewer hassles. This seminar covers tips for improving your experiences with the healthcare system and becoming more actively engaged in your own well-being.
Contributor, e-patients.net -
- blog of the Society for Participatory Medicine (SPM)
How Things Change - SPM member Jody Schoger’s post “Cancer: Part Two” at her blog Women with Cancer landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She’s a co-founder of #bcsm (breast cancer social media), one of the highest rated Tweetchats with almost 6,000 tweets per month.
contributor, KQED.org "State of Health"
What Do 'Engaged' Patients Do? Desiree Basila was 52 when her stage zero breast cancer — also called ductal carcinoma in situ — was diagnosed. While her cancer was found very early, she was ultimately diagnosed with the disease in both breasts. In addition, it was found in several locations. For Basila, doctors said her only realistic treatment option was double mastectomy — which Basila opposed. “If I die at 75 instead of 95 I think I can live with that,” she told me recently.
Stop designing studies around outcomes that don’t matter to patients I recently returned from four days of training in evidence-based healthcare (thank you, AHRQ and Colorado School of Public Health). I was honored to work side by side with journalists and decision makers as we learned to ferret out systematic bias in medical research.